Bruce and I are overwhelmed by the support this community has shown us lately. Friday night Case will be a honorary team Captain at the Gregory Portland High School Football Game!!!!! GO WILDCATS!!!!! He is so excited.
Thursday he gets to go and meet the players and Friday before the game he is going to the pep rally. It means a lot to have the support of the town we have chosen to raise our children in. We can not wait to have a fun night of football surrounded by GP fans and our friends.
I want to thank Robert Steele and his wife Vanessa and Matt Anastasio for arranging this. Anyone I am leaving out who was behind the scenes that I don't know about we thank you so much as well.
Wednesday, November 4, 2015
Strong? I think not
First of all Case is doing amazingly well. His surgery....complete success! He had more pain this time than ever before but it was his 4th open heart surgery and he is older so in my opinion that is to be expected! 4 weeks later and he is showing major signs of improvement and the pain is almost gone!
So through all of this people keep telling me how strong I am. They comment on my facebook how strong I am or how strong we are. I do not feel this way. I don't feel like I am strong. I only feel like I do what I have to do for my family and for my son. There are days I lie in pity and don't want to get out of bed. There are also days I cry most of the day. I don't put on makeup like I used to or do my hair, I used to be one of the most stylish women and now I really just don't have the want to dress up everyday. The times he is struggling I struggle in pain with him. I would give anything to go through this for him. Then there are days, like Monday, when we go to the cardiologist and with a huge smile he tells us how "happy" Case's heart looks....those are the strong happy days. I feel now he is doing so well that there will be many more of these happy days. It has just been a very rough go since March.
I thank it is very sweet and thoughtful that so many people see me as strong and I thank goodness that is what it looks like but I would never use that word to describe myself. I am a mom that was faced with a horrible diagnosis for my child and I am doing everything in my power to keep him healthy and alive. I think also most of my friends would step up to the plate if they were faced with what we have been faced with.
Fighting for Case is easy. He makes it easy because he is so wonderful, happy and special. He makes me want to be stronger.
So through all of this people keep telling me how strong I am. They comment on my facebook how strong I am or how strong we are. I do not feel this way. I don't feel like I am strong. I only feel like I do what I have to do for my family and for my son. There are days I lie in pity and don't want to get out of bed. There are also days I cry most of the day. I don't put on makeup like I used to or do my hair, I used to be one of the most stylish women and now I really just don't have the want to dress up everyday. The times he is struggling I struggle in pain with him. I would give anything to go through this for him. Then there are days, like Monday, when we go to the cardiologist and with a huge smile he tells us how "happy" Case's heart looks....those are the strong happy days. I feel now he is doing so well that there will be many more of these happy days. It has just been a very rough go since March.
I thank it is very sweet and thoughtful that so many people see me as strong and I thank goodness that is what it looks like but I would never use that word to describe myself. I am a mom that was faced with a horrible diagnosis for my child and I am doing everything in my power to keep him healthy and alive. I think also most of my friends would step up to the plate if they were faced with what we have been faced with.
Fighting for Case is easy. He makes it easy because he is so wonderful, happy and special. He makes me want to be stronger.
Saturday, September 26, 2015
Rollercoasters and Football Games
I feel like our lives these days consist of football games, school and preparing for an upcoming surgery. Today we started with a game and are waiting for a second. I love watching them play. The goal of youth sports is supposed to be fun...at times it is not. There is a lot of pressure put on little guys that probably shouldn't be there. A five year old is meant to have fun and to learn the game. We should learn to reinforce that winning isn't everything. I see parents yelling from the stands and kids not getting to play all for a big win. It is sad.
Then there is Case, I hear this is his 17th surgery. Most of them have been heart caths. This will be the 4th open heart surgery. Poor little child. Poor sweet child. I try not to feel sorry for him or us, I do this in quiet and when no one is watching. I think to myself why should one kid have to go through all of this? One little sweet 3 year old kid! Then I look at him and he is happy and he is LOVED, Case is so very loved. He is adored by his family and he is completely loved by our many friends. Strangers think of him and pray for him....I would even say that many strangers love him. He has touched so many lives and he has done it with a huge smile on his beautiful face. We are blessed to get to have such a wonderful child in our lives. He is the absolute happiest child with the biggest personality! He loves going to his brothers football games. It breaks my heart into a million pieces to see him fill with complete joy at football games knowing he will never play. He absolutely loves to spell out W-I-L-D-C-A-T-S and roar at the end. He's preparing himself to be a GP Wildcat and one day Bruce and I will have to break it to him that he will never step on that field as a player. It is small and in the scheme of all of these meaning less but it is one of the future things I am not looking forward to.
The Adams are excited about a big win this morning, hopefully one this afternoon and a BIG win on Oct. 7th when Case conquers the operating room with his "team" of surgeons, doctors and nurses.
Then there is Case, I hear this is his 17th surgery. Most of them have been heart caths. This will be the 4th open heart surgery. Poor little child. Poor sweet child. I try not to feel sorry for him or us, I do this in quiet and when no one is watching. I think to myself why should one kid have to go through all of this? One little sweet 3 year old kid! Then I look at him and he is happy and he is LOVED, Case is so very loved. He is adored by his family and he is completely loved by our many friends. Strangers think of him and pray for him....I would even say that many strangers love him. He has touched so many lives and he has done it with a huge smile on his beautiful face. We are blessed to get to have such a wonderful child in our lives. He is the absolute happiest child with the biggest personality! He loves going to his brothers football games. It breaks my heart into a million pieces to see him fill with complete joy at football games knowing he will never play. He absolutely loves to spell out W-I-L-D-C-A-T-S and roar at the end. He's preparing himself to be a GP Wildcat and one day Bruce and I will have to break it to him that he will never step on that field as a player. It is small and in the scheme of all of these meaning less but it is one of the future things I am not looking forward to.
The Adams are excited about a big win this morning, hopefully one this afternoon and a BIG win on Oct. 7th when Case conquers the operating room with his "team" of surgeons, doctors and nurses.
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