Sunday, February 3, 2013
Pictures
Ups and Downs
This has been a crazy after surgery experience. Case's blood pressure continued to remain high for almost 2 weeks after surgery. He had surgery on Thursday Jan. 10 and by the following Sunday he was extubated and seemed to be doing great. He began eating and through Monday we thought we would soon be heading home. Doctors were still at a loss for the cause of the high bp. On Tuesday all began to go south. When we came into the hospital Case just seemed very out of it and extremely "sunken in" (dehydrated). Something about him just didn't seem right. In the mid afternoon I was holding him feeding him and all of a sudden his blood pressure went extremely high (top number 180) and his heart rate dropped to 88. I pulled his bottle away and around his little mouth he was very modly and grey. The nurse pulled his blanket down and his entire body was like that. The doctor quickly came over and the nurse picked him up to place him in the bed, his body was so limp. Nurses came from every direction and began to quickly work on him and the cardiologist came in. Even typing this the memory of it is so overwhelming I can hardly catch my breath. Of course when it happened Bruce wasn't there, he had ran home for a quick second. The chaplain came to sit with me and after about 45 long minutes they came and told me Case was fine but he had experienced a hypertensive crisis. Wednesday and Thursday were somewhat better but he still just wasn't right...not at all the baby we know and love. Thursday afternoon his bp seemed to settle down a bit and I stayed with him until about 3 am Friday morning. We called early Friday morning (7:45) and they said he was doing really well but by the time we got up there around 9:30 things again were really bad. Case once again had turned grey bluish in color and had begun breathing very rapidly and heavily. When I tried to talk to him he was very out of it. The anestisiogist was called in. The doctors were taking Case for an MRI and wanted him intubated (babies have to be paralyzed to go into the MRI machine). We left and went outside to get some air and catch our breaths. When we got back upstairs we learned that when they intubated Cases little body had a very bad reaction to it. They even had to give recessitation meds according to the anestisiologist. Luckily everyone working on our little guy is so amazing and invested in our son's well being he made it through. He remained on the breathing tube all weekend and we learned he had Corona virus (basically a cold) which for his fragile little body was very difficult to fight off. He was extubated early Tuesday morning and began feedings by a tube on Wednesday. On Friday he got his first bottle and 2 days later is back to eating 3 to 4 ounces every 3 hours. What a differnece some time and rest can make on a little dude! His bood pressure seems to be leveling out and the doctors are slowly backing off of the meds. Today he was smiling and so full of life again. My heart is overjoyed that he is doing so well. I am praying soon we can bring our baby home. He just needed a little extra time!!
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